Tag Archives: identity

Lupus Warrior? Lupus Survivor? Lupus Thriver?

17 Apr

Last week at the LFA Heartland Chapter, we had a discussion about lupus and identity. We posed the question, “What do you prefer to be referred to as? Lupus warrior? Lupus survivor? Lupus thriver? ” on Facebook and we were overwhelmed by the volume of responses and how passionately everyone felt. In an effort to continue the conversation, we asked veteran blogger and regular contributor, Nicole to share her thoughts with us:

Nicole's PictureTo be honest, this is the first time I’ve thought about this. I’ve never considered giving myself a title in regards to my battle with lupus. So with that, I’d say I’m a lupus warrior. Although I cringe at the thought of ever letting lupus define me, I’ve been fighting lupus for 11 years now and I am quite proud to say this. 

Of course there have been many ups and down’s along the way, mentally and physically, but I am happy to currently be in remission and that is an accomplishment in and of itself. In a way, I have proven lupus wrong. 

Although I am in remission, I have to live with the fact that I can have an unexpected flare any moment. This daily reminder is a constant battle that I refuse to let ruin my day. Focusing on the positive is a must when having any negative thoughts. 

If you don’t like something change it; if you can’t change it, change the way you think about it.  ~ Mary Engelbreit

If you  would like to contribute, just send us an email at info@lfaheartland.org. We want to hear your stories and opinions whatever your connection to lupus and the Heartland Chapter.